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CP Awareness Month: My Journey of Resilience and Faith

Updated: Mar 4



Roy Jones on Wheels sitting outside in wheelchair.

CP Awareness Month Introduction: 

  

March marks Cerebral Palsy (CP) Awareness Month, a time to illuminate the journeys of individuals living with CP and honor their resilience. As someone with Spastic Diplegia Cerebral Palsy, I understand firsthand the challenges and triumphs that come with this condition. In this blog post, we'll explore CP facts, struggles, and the significant role of God in my journey. Additionally, I'll share insights into my blessed ability to live independently, a testament to the strength and grace bestowed upon me. 

  

What is Cerebral Palsy? 

  

Cerebral Palsy is a neurological disorder affecting movement and posture, often resulting from brain damage before, during, or shortly after birth. 

  

Six Facts about Cerebral Palsy: 

  

1. CP is the most common motor disability in childhood, impacting roughly 1 in 323 children in the US. 

2. The severity of CP symptoms varies, from mild to profound impairment. 

3. CP is non-progressive, meaning the brain injury does not worsen over time, but the symptoms can change. 

4. CP can co-occur with other conditions such as epilepsy, intellectual disabilities, and vision or hearing impairments. 

5. While the exact cause of CP is often unknown, factors such as premature birth, low birth weight, infections during pregnancy, and birth complications can increase the risk. 

6. CP affects each individual differently, with some experiencing primarily motor impairments while others may also have cognitive or sensory challenges. 

 


Roy Jones on Wheels sitting on the floor putting shoes on.

 

Struggles Faced by Individuals with CP: 

  

Although the struggles living with CP look different for each of us, here are just a few common ones: 

  

  •  Mobility Challenges: Muscle stiffness and coordination issues make daily tasks arduous, such as walking, getting dressed, or using stairs. 

  •  Accessibility Barriers: Limited access to public spaces, transportation, and buildings can hinder independence and participation in social activities. 

  •  Social Stigma: Misconceptions and stereotypes about disabilities can lead to social isolation, discrimination, and a lack of opportunities. 

  •  Healthcare Disparities: Accessing specialized healthcare services, therapies, and assistive devices can be challenging, leading to disparities in health outcomes. 

  •  Educational Challenges: Individuals with CP may face difficulties accessing inclusive education and may require additional support and accommodations to succeed academically. 

  

Faith as a Source of Strength and Independence: 

  

Faith in God serves as an unwavering pillar of strength. Trusting in God's plan offers solace, resilience, and a sense of purpose amidst adversity. Through prayer and community support, I find the courage to navigate life's challenges with unwavering hope. 

 

Roy Jones on Wheels at Texas Roadhouse

  

Living independently with Cerebral Palsy has been a journey filled with obstacles and doubts, especially considering that even my own family once believed I would never be capable of managing my own affairs, let alone living on my own. Despite these challenges and the initial skepticism, I have been truly blessed to defy expectations and thrive independently, a testament to God's grace and the unwavering support of friends and chosen family. 

  

While certain tasks require assistance, I have embraced the opportunities for growth and self-sufficiency. Through perseverance and determination, I have learned to navigate life's challenges with resilience and grace. Despite the hurdles posed by CP, I have refused to let it define my capabilities or limit my aspirations. 

  

 

Conclusion: 

  

As we honor Cerebral Palsy Awareness Month, let's come together to amplify awareness and advocate for inclusivity and support for individuals with CP. By recognizing our strengths and celebrating our achievements, we can foster a more compassionate society. I am grateful for the independence I enjoy, guided by faith and bolstered by the unwavering support of my community.


I invite you to share your own stories and experiences in the comments below or reach out via email using the contact form at https://royjonesonwheels.com/. Your voice matters, and your insights can inspire others on their journey.


Stay connected with our blog to stay updated on our journey and receive valuable insights and inspiration. Don't miss any updates by subscribing today! Additionally, follow me on social media platforms like Facebook, Instagram, and TikTok for more personal stories, behind-the-scenes moments, and empowering content. Look for Roy Jones on Wheels and join our supportive community. Let's continue spreading awareness and advocating for a more inclusive world.

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